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Run 2 Cure Neuroblastoma

Here at phil&teds and Mountain Buggy, we are committed to helping families adapt&survive and live life without limit. We take great pride in supporting causes that give back to the communities that have supported us for over 20 years. 

Here at phil&teds and Mountain Buggy, we are committed to helping families adapt&survive and live life without limit. We take great pride in supporting causes that give back to the communities that have supported us for over 20 years.

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Neuroblastoma Australia is one organisation that we proudly support that needs not just our efforts but yours as well. The Run 2 Cure Neuroblastoma fun run held in Sydney, Australia is dedicated to raising funds for neuroblastoma research programs, such as significant and promising research currently taking place at the Children's Cancer Institute Australia.

 

Give these brave kids a fighting chance and show your support too. In turn, we will show ours and will be giving away a phil&teds Smart and Mountain Buggy nano . All you need to do is enter the race and you're eligible to win. 

Support this great cause, get involved and come out for a fun day in the sun!

 

Sienna's Story 

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Sienna was born in London on the 27th of July 2007 and was a perfectly happy and healthy baby girl. We moved to Sydney when she was 7 months old, with the vision of a relaxing and peaceful life by the beach.

Our world fell apart. However, 6 weeks later, Sienna had a temperature, which was a originally dismissed as a common infection. When the temperature reappeared 2 days later we took her to Sydney Children's Hospital in Randwick. Two doctors announced the news to us; a very large tumour had been found.y the beach. 

Sienna had the most aggressive type of neuroblastoma called 'mync amplification'. She needed to follow a high risk treatment, involving high dose chemotherapy, surgery, a stem cell transplant and radiotherapy. Sienna had a 40% chance of survival. 

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At the age of 10 months, Sienna was declared to be in remission. She developed a real zest for life! She was extremely energetic and didn't believe in sleep! Sienna loved going to the zoo to see her favourite 'anmals'; she loved drawing, painting, dancing and watching Playschool.

We were hopeful that the disease had well and truly disappeared, but during her routine scans in September 2010, we received the devastating news that there was a new tumour... 

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The chance of survival after a relapse with neuroblastoma was around 1%. However, this tumour was in a new site and had not spread elsewhere, so we embarked on the next round of treatment with radiotherapy and different chemotherapy. 

We hoped this would buy us time; a new drug was set to be available in 2010 that showed promise. Sydney Children's Hospital tried to secure Sienna the new drug in 2009, when a limited supply was available, but the governing organisation only gave it to children who had not yet relapsed. 

Tragically, time was not on our side. Sienna relapsed again at the end of radiotherapy, with 6 new tumours appearing. We were then told the news no parent wants to hear: our precious daughter would die from this disease. 

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We had a glimmer of hope when we were reliably informed that the chemotherapy had good results. This glimmer turned into a glow when results showed that 5 out of the 6 tumours had responded. The 6th tumour was in the original site and had grown slightly. We hoped the last tumour would respond with more chemotherapy. 

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Sienna was her usual self; a busy, giggling and cheeky toddler. Unfortunately, our hopes were destroyed when the final tumour grew extremely fast and aggressively. Our brave daughter could have bet the disease if her personality alone was the determining factor, but her neuroblastoma was simply too aggressive. 

Sienna became a little angel on February 3rd 2010, at just 2.5 years old. She missed the birth of her little brother Jamie, who was born 5 days later. We all miss her dreadfully. 

Lucy and Oliver Hoffman. 

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